Archives

Criticism of the draft Disabled People’s Rights Plan

There is no reason to doubt the noble intentions of the Welsh Government in seeking to improve the rights of Disabled People. There is no reason to question the aspirational…

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A ‘sitting duck’ for allegations of fabricated or induced illness (FII)

The Sunday Times in its investigation into wrongful allegations of FII, carried a further harrowing story on 10 August 2025.  It concerns Maeve Boothby O’Neill who died in 2021 (aged…

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Conference: September 15th ~ Leeds

Parent Blame: Where are we now? (Cerebra LEaP Project, Leeds University). For details click here.

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Conference: October 25th ~ Hereford

Tackling the Crisis In Children's Social Care Conference (The Families’ Alliance for Change): October 25th 2025.  For details  click here.

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A ‘sitting duck’ for allegations of fabricated or induced illness (FII)

The Sunday Times in its investigation into wrongful allegations of FII, carried a further harrowing story on 10 August 2025.  It concerns Maeve Boothby O’Neill who died in 2021 (aged…

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Parental Alienation Syndrome (PAS)

For a fascinating paper in the Sheffield Tribune concerning PAS (that has strong FII echoes) click here.

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s117 MHA 1983 and ‘entrenched indifference’

A good colleague has summarised three ombudsman reports concerning the alarming failures by the key health and social care bodies in Peterborough with responsibility for providing support for a disabled…

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Good Morning Britain & FII

For an extended ITV interview with a parent wrongly accused of FII, (broadcast on 21 July 2025) click here.

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Fabricated or Induced Illness (FII): further investigations

The Sunday Times has published a further article concerning its investigation into the false allegations that are being made against parents that they are fabricating or inducing their child’s illness. …

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Sunday Times FII investigation

A major article appeared in the Sunday Times on 20 July 2025 concerning its investigation into the impact that unsubstantiated Fabricated or Induced Illness (FII) allegations are having on countless…

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A disregard for the humanity of those involved

Increasingly I am confronted by cases involving profoundly disabled children where the behaviour of the NHS takes my breath away.  Of course, the NHS is generally spectacular when called upon…

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Herefordshire Council (again)

The failings of Herefordshire Children’s Services have figured in a number of posts in these webpages and these accounts continue – for a recent and troubling Observer Newspaper story concerning…

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Institute for Government Report

For another – but nonetheless important – report on the political and economic costs of the disgraceful neglect of adult social care in England, click here.

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Facilitated communication

For an important and profoundly troubling article concerning the use of  'facilitated communication' click here.    

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Harm resulting from geniuine cases of Fabricated or Induced illness (FII)

A recent (May 2025) research paper by Professors Andy Bilson and Alessandro Talia involved a comprehensive review of Serious Case Reviews (SCRs) in England from 2010 to 2021.  It found…

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Fabricated or Induced Illness (FII): a new critical report

St George's House, based in the grounds of Windsor Castle was founded in 1966 by the (then) Duke of Edinburgh and the (then) Dean of Windsor.  It seeks to effect…

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FII ~ Welsh Government Failing to End the ‘Cruel Abuse’ of Autistic Parents and Autistic Children

Mark Isherwood North Wales MS and Chair of both the Cross-Party Autism Group and the Cross-Party Group on Disability, has endorsed the comments of one of his Flintshire constituent’s –…

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Special Needs Jungle Petition

There are strong rumours that the Government is planning to impose drastic restrictions on the provision of specialist educational support for children and young people – or indeed – scrapping…

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Why is ‘listening’ so difficult?

The  Shropshire Parent and Carer Council  has just published a powerful report ‘Mad, Sad, Glad’ that reflects on the feedback Parent Carers across their county have provided.  Parent Carers were…

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Putting the record straight

The posting that follows, has been published by the disabled children’s charity Cerebra at https://cerebra.org.uk/legal-rights/putting-the-record-straight/.   It is a response to the lecture delivered by Baroness Hale of Richmond at The…

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Families’ Alliance for Change

There is no shortage of Children’s Services’ authorities who have lost touch / stopped listening to the families that they are there to serve.  As Lord Justice Munby said ‘the…

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Relentless ICB cuts to Children’s NHS CC support

Arbitrary cuts by to gravely ill children's Continuing Care (CC) support packages  appear (to me) to be occurring on a very regular basis.  For a details of a crowd funding…

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The Health and Social Care (Wales) Act 2025

The 2025 Act Health and Social Care (Wales) Act 2025 received Royal Assent on the 24 March 2025.  Its major impact will be to restrict, in Wales, the making of…

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Cerebra mass participation event

For details of a 2,500 km Cerebra Fund Raising Relay of 250 stages from Scotland and through England and Wales in June / July’ click here.

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Parent Blame webinar

For details of an ADASS webinar (1.4.25) ‘Blamed Instead of Helped – Understanding Parental Blame in Autism Support’ click here.

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too afraid to grasp the nettle

For scathing criticism of Welsh Government social care reform inaction, click here.

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Children’s Wellbeing & Schools Bill

For a JUSTICE briefing concerning essential amendments to the Bill click here.

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Disabled children’s continence care services: a national scandal

A major research report has been published concerning the degrading experiences of many disabled children who are denied adequate continence support services.  The report, ‘Inaccessible, unacceptable and unaccountable: the provision…

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Pam Coughlan

Pam Coughlan passed away on the 8th January 2025. Paralysed as a result of a spinal cord injury in 1971, she took on the Secretary of State for Health and…

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Law Commission’s consultation ~ Disabled Children’s Social Care

The deadline for commenting on the Law Commission’s Disabled Children’s Social Care Consultation Paper has been extended, and is now Friday 31 January 2025 (23:59). A copy of my response…

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Why everyone should be talking about Tash Ashby

Tash Ashby was 21 years old when she died. At the time of her death, she was street homeless, living in the undergrowth around Hereford bus station. Her lifeless body…

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Autism and Parent Blame

An Association of Directors of Social Services (ADASS) report ‘Blamed Instead of Helped’ makes many important points, not least at page 12  - that autistic parents are three times more…

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Medically complex children, Children’s Continuing Care, and Children’s Social Care: dispatches from no-man’s land

A guest posting by Lisa Ballesteros.   Background My son, T, wasn’t expected to survive the night. Born at 26 weeks gestation with an alphabet soup of medical conditions, he…

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Inherent jurisdiction detaining a minor

For a curious case involving Conwy Council and the Betsi Cadwaladr UHB click here and for a legal commentary on the judgment click here.

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Mental Health Bill ~ urgent amendment

A recent High Court judgment Sammut & Others v Next Steps Mental Healthcare Ltd & The Greater Manchester Mental Health NHS Foundation Trust [2024] EWHC 2265 (KB) has identified a…

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High Court damages award for wrongful care proceedings

An important claim concerning wrongful care proceedings has finally been settled by an English Children’s Services council.  The claim was brought by the campaigner Elly Chapple – the founder of…

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Accountability: what accountability?

In an earlier posting we referred to a judgment of the Newport Family Court that concerned dreadful behaviour by a Welsh council and a Welsh police force.  We expressed concern…

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NHS Children and Young Peoples Continuing care and EHC Plans

An important judgment, R (A) v North Central London Integrated Care Board [2024] EWHC 2682 (Admin) that confirms the mandatory duty on ICBs to provide care plans that spell out…

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A powerful short video

Grow Family Services – for an incredibly powerful video ‘A Parent’s Fight’ in which families describe the trauma of dealing with the SEND system – click here.

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Law Commission Paper

The Law Commission has published its Consultation Paper on the reform of Disabled Children's Social Care Law.  On first reading it looks pretty positive.  The consultation closes on the 22…

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Mumfighter – Swansea Grand Theatre

An important ‘must see’ play concerning a mother fighting for support and services in a world full of prejudice – it runs from October 15 – October 25 - click…

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A lack of rigour and candour

A damning report by the Public Services Ombudsman for Wales[1] (PSOW) into ‘a serious service failure’ by the Wrexham Maelor Hospital compounded by the lack of both rigour and candour…

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A Newport Family Court judgment

An important (albeit partially redacted) judgment in the case of Re C (A Child) (Care Proceedings Withdrawal) [2024] EWFC 227 (B) has been published.  The Transparency Project has released an…

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‘Complex’ BBC Sounds

A powerful series concerning the challenges faced by families with disabled children. Episode 1 (concerning Disabled Facilities Grants) accessed by clicking here.  

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Making ‘Carers’ a protected category

For a Carers UK report on making unpaid carers the 10th protected category in the Equality Act 2010 click here.

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Call to withdraw FII guidance

In an Open Letter to the Royal College of Paediatrics and Child Health, a number of researchers and NGOs called for the withdrawal of its guidance concerning FII (Fabricated or…

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Systems Generated Trauma ~ survey

Cerebra and the University of Leeds are collaborating on research that seeks to better understand the extent to which parents of disabled children experience trauma as a result of navigating…

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Abolishing home care charges

The Disability Law Service has published a report that makes the case for the abolition of home care charges for Disabled adults in England. The research that underpins the report…

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Systems Generated Trauma Conference

For a brief note on the above (including a link to recordings of its first two sessions) click here.

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Herefordshire children’s services – a public inquiry: if not here, then where?

A fascinating hustings took place in Hereford prior to the election concerning the ‘Crisis in Children's Services’. Nationally, as we all know, children's services are in crisis: a ‘scandal’ ……

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