Luke Clements is the Cerebra Professor of Law at Leeds University.
The posting that follows, has been published by the disabled children’s charity Cerebra at https://cerebra.org.uk/legal-rights/putting-the-record-straight/. It is a response to the lecture delivered by Baroness Hale of Richmond at The…
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There is no shortage of Children’s Services’ authorities who have lost touch / stopped listening to the families that they are there to serve. As Lord Justice Munby said ‘the…
Read moreArbitrary cuts by to gravely ill children's Continuing Care (CC) support packages appear (to me) to be occurring on a very regular basis. For a details of a crowd funding…
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The 2025 Act Health and Social Care (Wales) Act 2025 received Royal Assent on the 24 March 2025. Its major impact will be to restrict, in Wales, the making of…
Read moreFor details of a 2,500 km Cerebra Fund Raising Relay of 250 stages from Scotland and through England and Wales in June / July’ click here.
Read moreFor details of an ADASS webinar (1.4.25) ‘Blamed Instead of Helped – Understanding Parental Blame in Autism Support’ click here.
Read moreFor scathing criticism of Welsh Government social care reform inaction, click here.
Read moreFor a JUSTICE briefing concerning essential amendments to the Bill click here.
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A major research report has been published concerning the degrading experiences of many disabled children who are denied adequate continence support services. The report, ‘Inaccessible, unacceptable and unaccountable: the provision…
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Pam Coughlan passed away on the 8th January 2025. Paralysed as a result of a spinal cord injury in 1971, she took on the Secretary of State for Health and…
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The deadline for commenting on the Law Commission’s Disabled Children’s Social Care Consultation Paper has been extended, and is now Friday 31 January 2025 (23:59). A copy of my response…
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Tash Ashby was 21 years old when she died. At the time of her death, she was street homeless, living in the undergrowth around Hereford bus station. Her lifeless body…
Read moreAn Association of Directors of Social Services (ADASS) report ‘Blamed Instead of Helped’ makes many important points, not least at page 12 - that autistic parents are three times more…
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A guest posting by Lisa Ballesteros. Background My son, T, wasn’t expected to survive the night. Born at 26 weeks gestation with an alphabet soup of medical conditions, he…
Read moreFor a curious case involving Conwy Council and the Betsi Cadwaladr UHB click here and for a legal commentary on the judgment click here.
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A recent High Court judgment Sammut & Others v Next Steps Mental Healthcare Ltd & The Greater Manchester Mental Health NHS Foundation Trust [2024] EWHC 2265 (KB) has identified a…
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An important claim concerning wrongful care proceedings has finally been settled by an English Children’s Services council. The claim was brought by the campaigner Elly Chapple – the founder of…
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In an earlier posting we referred to a judgment of the Newport Family Court that concerned dreadful behaviour by a Welsh council and a Welsh police force. We expressed concern…
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An important judgment, R (A) v North Central London Integrated Care Board [2024] EWHC 2682 (Admin) that confirms the mandatory duty on ICBs to provide care plans that spell out…
Read moreGrow Family Services – for an incredibly powerful video ‘A Parent’s Fight’ in which families describe the trauma of dealing with the SEND system – click here.
Read moreThe Law Commission has published its Consultation Paper on the reform of Disabled Children's Social Care Law. On first reading it looks pretty positive. The consultation closes on the 22…
Read moreAn important ‘must see’ play concerning a mother fighting for support and services in a world full of prejudice – it runs from October 15 – October 25 - click…
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A damning report by the Public Services Ombudsman for Wales[1] (PSOW) into ‘a serious service failure’ by the Wrexham Maelor Hospital compounded by the lack of both rigour and candour…
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An important (albeit partially redacted) judgment in the case of Re C (A Child) (Care Proceedings Withdrawal) [2024] EWFC 227 (B) has been published. The Transparency Project has released an…
Read moreA powerful series concerning the challenges faced by families with disabled children. Episode 1 (concerning Disabled Facilities Grants) accessed by clicking here.
Read moreFor a Carers UK report on making unpaid carers the 10th protected category in the Equality Act 2010 click here.
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In an Open Letter to the Royal College of Paediatrics and Child Health, a number of researchers and NGOs called for the withdrawal of its guidance concerning FII (Fabricated or…
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Cerebra and the University of Leeds are collaborating on research that seeks to better understand the extent to which parents of disabled children experience trauma as a result of navigating…
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The Disability Law Service has published a report that makes the case for the abolition of home care charges for Disabled adults in England. The research that underpins the report…
Read moreFor a brief note on the above (including a link to recordings of its first two sessions) click here.
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A fascinating hustings took place in Hereford prior to the election concerning the ‘Crisis in Children's Services’. Nationally, as we all know, children's services are in crisis: a ‘scandal’ ……
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‘Trauma related practice’ is a phrase increasingly used by public bodies to convey their awareness that many of those with whom they interact have experienced life changing traumas. As a…
Read moreFor a chance to hear Herefordshire Parliamentary Candidates answer questions concerning 'the crisis in children's services' at a meeting on the 18th June - click here.
Read moreFor a news item in Nation.Cymru concerning the actions of a Welsh Council and the Public Services Ombudsman for Wales, click here.
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The Health and Social Care Committee has launched a consultation to inform its scrutiny of the recently introduced Health and Social Care (Wales) Bill. The consultation closes on the 28th…
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We all need quality ‘short breaks’ – but for many parents of disabled children they are a distant dream. Fit for purpose ‘breaks’ from heavy caring commitments depend on several…
Read moreThe Welsh Government has launched the NOCS – the first rung in the ladder to the National Care and Support Service. For details click here.
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Cerebra, IPSEA, SOS!SEN and Contact have jointly written and article expressing concern about revised school transport guidance issued by the Department for Education and inviting families to complete a short…
Read moreAn expert panel discussion concerning Fabricated & Induced Illness (FII) organised by Autistic Parents UK - for details click here.
Read moreDonald Forrester of CASCADE will discuss his recently published book on social work and human rights. To register for the seminar click here.
Read moreThe Welsh Government is proposing to raising the current charging cap for non-residential care from £100 to £120 per week. The announcement can accessed by clicking here and a commentary…
Read moreFor a details of questions raised by Senedd Member Mark Isherwood concerning the prevalence of Fabricated or Induced Illness allegations in Wales - click here.
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North Wales Member of the Senedd and Chair its Cross-Party Autism Group, Mark Isherwood, has raised concerns with the Minister for Health and Social Services that parents of neurodiverse children…
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Cerebra, the disabled children’s charity has published[1] an important and troubling analysis of data concerning the performance of the Local Government and Social Care Ombudsman (LGO). Over a decade of…
Read moreCASCAIDr, the social care advice charity is crowdfunding to obtain barristers' views on undecided points of law – for details click here.
Read moreThe Bevan Commission’s report ‘The Foundations for the Future Model of Health and Care in Wales’ can be accessed by clicking here.
Read moreADSS Cymru, Solace Wales, CLILC WLGA and Social Care Wales have jointly published a report with this title – which can be accessed by clicking here.
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As expected, disabled children and their families will be disappointed by the updated 2023 Working Together guidance. Despite compelling evidence that local authority assessment and care planning protocols discriminate against…
Read moreAn NHS England survey to better understand carers experiences of care plans can be accessed by clicking here. Unreasonably short timeline (it closes 2nd January) but an important issue nevertheless.
Read moreFor Nathan Davies' Petition to the Senedd regarding Direct Payments in Wales click here.
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